Frequently Asked Questions
What is the Bleuberi app?
Bleuberi is a tool to help caregivers and individuals with epilepsy manage their epilepsy and health better. It helps them to easily keep track of seizures, daily health factors, routines, medications, vitals, and more. Bleuberi should be used in conjunction and in consultation with your doctor, neurologist, and/or other members of your healthcare professional team.
Is Bleuberi available for Android as well or just for iOS?
Unfortunately given our limited resources currently, Bleuberi is only available on iOS devices at this time. We hope to be able develop an Android version in the near future as we grow and have more resources available to do so. Please contact us at firstname.lastname@example.org to get on our mailing list if you are interested and we will notify you as soon as we are able to develop an Android version.
How do I record an active seizure in real time?
As soon as a seizure happens, click the Record Seizure button from the main dashboard to launch the hands free audio recording feature. Once launched, the app will automatically start timing the seizure and you can make verbal notes about your observations as to what’s happening during the seizure event. Once the seizure is over, click the Stop Recording button. A record of the seizure will then be created and stored and you will be taken to the Seizure Journal where you can enter additional details about the seizure. Fill in as little or as much as you want. Click Done when finished to save the additional details about the seizure.
What are the Time and Seizure Alerts I hear while I’m recording an active seizure using the hands free audio recording function?
It is chaotic when you’re dealing with an active seizure event. Many times you lose track of how much time has passed and you sometimes forget what the next steps you need to take are in order to manage the event appropriately. We included audible announcements reminding you of time and next steps as part of our hands free audio recording function to help you manage the event appropriately while you’re recording the event. With these audible announcements, never lose track of time or forget next steps again while managing an active seizure event.
Can I customize the Seizure Alerts so they are set to come on at specific times of my choosing based on my specific needs?
Yes, you can. We understand that everyone’s journey with epilepsy is different and unique and that you all have differing needs. While Bleuberi has a default preset setting for when these seizure alerts will come on, you change the times as well as which alerts will come on or not based on your personal needs and your doctor’s recommendations. You can do this by going to Settings>Record Seizure Custom Alerts. Right now, there are 5 alerts (“Administer Seizure First Aid,” “Continue Seizure First Aid,” “Prepare Rescue Medication,” “Give Rescue Medications,” and “Call 911”) available for you to choose from. You edit the timing of when each alert will come on by clicking Edit as well as turn on or off which alerts you need or don’t need.
How do I call for emergency assistance while in the midst of recording and managing an active seizure event?
In case of the need to call for emergency assistance such as when the seizure has lasted for approximately 5 minutes or longer, you can dial emergency services directly from the app’s audio recording screen by pressing the Call 911 button. A pop up message will ask you to confirm or cancel the call to emergency services. Please, ask a bystander if there to also call emergency services as a backup. Be sure to continue to administer seizure first aid until help arrives. Seizure first aid information can be accessed by clicking on the Seizure First Aid button on the app’s audio recording screen.
If I missed recording an active seizure in real time, how do I record a seizure after the fact?
To enter and record a seizure after it’s already happened, click the Seizure Journal icon from the app dashboard. Enter the duration of the seizure and fill out as little or as much as you want about the seizure event you are recording. Once you click Done, a new seizure record will be created. If you are not entering the seizure shortly after the event has occurred, you will need to correct the date and time of the event by clicking on the newly created seizure record from the Seizure Summary list, click Edit, then click the Change Date and Time button to enter appropriate date and time.
HOW DO I MANAGE MY AUDIO RECORDINGS/FILES?
All of your audio recordings are stored on Bleuberi’s server. You can manage or delete your audio files by clicking Settings and then clicking Audio Files. Once you’ve sufficiently logged all of the details of the seizure into the Seizure Journal, we recommend that you regularly manage your audio recordings and keep only the audio files that you deem most important (for example the recordings of seizures that you want to replay for your doctor) so that you’ll be able to more easily locate these important recordings at a later date.
What is the daily Health Journal?
Epilepsy is about more than just seizures, it impacts a patient’s overall health and well-being. It is not enough to just be recording and tracking seizures. You also need to understand the impact epilepsy is having on your daily health factors such as mood, anxiety, aggression, energy, sleep, appetite, treatment side effects, vitals, and more. Bleuberi’s Health Journal will allow you to keep track of all these important factors on a daily basis. You can access the Health Journal by clicking on the Health Journal icon from the app’s main dashboard screen.
Do I need to fill out and answer every question in either the Seizure Journal or the daily Health Journal?
No, you do not. Every patient’s situation is different with differing needs. We also recognize that everyone has different time constraints. You can fill out as little or as much of either the Seizure and Health Journals as you would like each time. However, we recommend that you enter as much information as you can because the more you enter, the more you will get out of Bleuberi. The more you enter, the more Bleuberi will be able to help you and your doctor spot important patterns, trends, and potential triggers to help you better manage your epilepsy.
Where do I enter my medications, whether Pharmaceuticals, Cannabis, or both?
Find each of the Pharmaceutical or Cannabis Medication icons on the dashboard of the app and click on the one you want to enter, then click the “+” sign at the top right hand corner. From there, you will be able to enter the name and dosages of your medication. For both types of medications you can choose between tablet or liquid and mg or ml as appropriate. Identity each of your different medications by taking a photo of the bottle or pills or both.
How do I schedule Medication Reminders so I don’t ever miss a dose again?
After entering your new medications, scroll down and you can schedule reminder alerts for that particular medication based on your doctor’s instructions. Alerts include days of the week and times of day you will be your taking medication. You can schedule up to 4 reminders a day!
How do I respond to a Medication Reminder Alert?
A pop up notification will alert you for each medication you scheduled at the appropriate time you previously set, even when the app is closed on your phone. Click on the “Time to Take Medication” alert and it will bring you to the specific medication record it was scheduled to alert you for. Next, answer the popup window asking “Did you take your medication?” by clicking either “Yes, I did” or “No,” you will then see a popup window that says “Success”. Click “OK” and your medication history will be updated.
I have multiple medications that need to be taken at the same time, how do I log that I’ve taken the other medications as well once I’ve responded to a single medication reminder notification?
If you have multiple medications scheduled for the same time, you can log whether you’ve taken them by clicking the “<“ at the top left after you’ve clicked “OK” on the “Success” popup window once you’ve responded to any medication reminder notification. You will then be taken to your medications list. You will see that the particular medication you’ve just responded to will be highlighted in green if you responded “Yes, I did.” You can click on any of your other medications and scroll down to the bottom and click “Take Medication” to log that you’ve taken that particular medication. Repeat as necessary for all of your other medications.
You can also access all of the other medication reminder notification alerts by swiping down from the top of your iPhone or iPad. You will then see all of the remaining medication reminder notifications listed. Click on each one and respond accordingly. Repeat as necessary for all your medications.
What does Active and Inactive in the Medication List mean?
An Active Medication is one you are currently actively taking and have created a record for dosages and reminders. If you’re no longer taking a medication, you can make that medication Inactive by going to the Medication List, clicking that particular medication, click edit, click Inactive, and answer why you’re no longer taking it for your medication history so you’ll know why you stopped taking that particular medication at a later date.
How do I see what all of the information and data that I’ve entered into the Seizure and Health Journal means?
Results from all of your hard work diligently journaling using the Seizure and Health Journals can be viewed in graphical form in the Seizure and Health Results portion of the app. Access either the Seizure or Health Results by clicking on either the Seizure and Health Results icons from the main dashboard of the app. Each graphs reflects the detailed information you observed for seizures and the daily health factors you’ve recorded. You can view the graphs by the week, month, year, year to date or selected customized date range. Scroll up and down to view all the different graphs. All bar graphs can be side scrolled within the graph to view additional content.
What are the Advanced Results graphs?
The Advanced Results graphs allow you and your doctor to view side by side comparisons of your Seizure Results, Health Results, and Medication history for all your different medications. Click the bar above the top graph and click the bar above the bottom graph to select and alternate between Seizure Results, Health Results, Pharmaceutical Medications, and Cannabis Medications. Click the left or right arrow just below each of the top and bottom graphs to scroll through all of the different Seizure Results and Health Results graphs as well as your different Pharmaceutical and Cannabis Medication dosage history graphs. You can view the graphs by the week, month, year, year to date or select a customized date range.
I need additional help, have other questions, or require technical assistance, how can I reach you?
For general questions and inquiries, please email us at email@example.com.
For problems or issues requiring technical assistance, please email us at firstname.lastname@example.org.
We will endeavor to respond to you as expeditiously as we can. Thank you!